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Beyond the pale folklore, family, and the mystery of our hidden genes

Beyond the pale folklore, family, and the mystery of our hidden genes

Urquhart, Emily.
Restricted EAudiobook (NNELS) 2015

The story begins on St. Stephen's Day, 2010, in St. John's, NL, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. After three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime indoors. A journalist and folklore scholar accustomed to processing the world through othe...

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Explore Topics & Themes:
Albinism Biography
Albinism in animals Biography
Genetic disorders in children Patients Family relationships Canada
Heredity
Mothers and daughters Canada Biography
Parents of children with disabilities Canada Biography
People with albinism Biography
Urquhart, Emily Family
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Edition:
First edition
Description:
digital files : DAISY 2.02, .txt
digital Digital recording
data file
Other Title:
Beyond the pale [restricted eText (NNELS)] folklore, family, and the mystery of our hidden genes
Notes:
Synthetic voice
Includes bibliographical references and Internet addresses
Restricted to use by people with documented print impairment
Produced by the National Network for Equitable Library Service (NNELS)
Vancouver, B.C. : BC Libraries Cooperative, 2015
Toronto : Harper Avenue, [2015]
Original version : 282 pages, [8] pages of plates : illustrations (some colour) 9781443423564 1443423564
Mode of access: World wide web
Control Number:
1515644
Other Authors:
Apple Samantha (synthetic), narrator
BC Libraries Cooperative. National Network for Equitable Library Service
Additional Links:
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